I’ve had intermittent facial pain for the past 4 years, approximately. It mostly affects my left side, and can involve my nose, sinuses, teeth, jaw, eye, and ear. I have sought medical advice on numerous occasions. Here’s what I’ve been told at my various appointments, in pretty much this order:
“It’s probably allergies. Try this nasal spray.”
“It could be a tooth infection. Go visit a dentist.”
“I don’t see anything wrong with your teeth. Follow up with your doctor.”
“It could be allergies. Try this nasal spray.”
The pain and irritation comes and goes. I’d pursue an accurate diagnosis more frequently, but I hate going to doctors. My faith in the medical system was completely destroyed by years of visiting countless doctors who either dismissed my issues or couldn’t help at all. Therefore, it’s a rare occasion that I actually seek their help anymore – usually I have to be in somewhat bad shape to decide to brave their offices again. Not to mention, floxing gave me a higher than normal tolerance for physical discomfort by forcing me to endure illness and pain for several years with no help whatsoever. So, I tend to live with bothersome symptoms for long periods of time, hoping they’ll just go away eventually. Smart, huh? Yeah, I think so, too.
Anyway, one reason doctors haven’t been able to help is because all they seem to do is speculate rather than identify the root cause of the problem. Then they prescribe drugs to mask symptoms. But as weeks and months drag on, I inevitably forget these details and end up in an exam room again at some point.
This time, though, when my discomfort flared again I remembered the results from all the visits of the past, especially the “It’s probably allergies. Try this nasal spray” thing. So, I decided to try some nasal spray before heading to the doctor again. Luckily, I have amassed a small collection of little-used physician samples over the years, and so I happened to have two such sprays to choose from. I picked Nasonex, mostly because it was in arms reach the moment it occurred to me. Bonus: it wasn’t even expired.
Because my chemical sensitivities have improved so drastically from the first 2 years I was sick, I tend to forget I’m still very sensitive to drugs of all varieties. (I take them only rarely.) So, when I decided to squirt one spray into my affected nostril, I was surprised by the side effects that ensued in the coming hours.
First, I began to feel crappy. Yes, that’s a vague description, but it was a noticeable contrast from the previous two days of feeling relatively good. In addition, within a couple of hours I began to get joint and tendon pain, nausea, mild peripheral neuropathy of the itchy/crawly variety, muscle twitching, nausea, stomachache, and jitteriness.
I thought, “Oh no, am I coming down with the flu?” Then I thought, “Wait a minute…surely it can’t be from that ONE SQUIRT of nasal spray in my one nostril, can it?” So I googled “Nasonex Side Effects”.
The answer? Yes. Every single one of my sudden symptoms could, in fact, be related to that single spray of Nasonex. Well, except for the peripheral neuropathy, I think. Most medications tend to flare that no matter what – just another gift from Cipro that keeps on fucking giving.
But anyway…I’m going to share some gems I stumbled across in my google searches, just to illustrate how ridiculous life with sensitivities really is.
Some of my symptoms fall under the “normal side effects” category. That’s fine. I understand that even healthy people get side effects from medications.
Some of them, however, fall into different categories. “Flu-like symptoms” falls into the “call your doctor at once if you have any of these serious side effects” category. Oh really? No, thanks. That’s a quick route to a “paranoia” notation in my medical chart.
Now, jitteriness was another story. I didn’t see it mentioned on mainstream websites, so I decided to do another google search: “Nasonex jitters”. Of course, I got several hits. It must be a known but rare effect. Whatever. It happens. I am certainly no stranger to the concept of rare side effects. What struck me as beyond ridiculous, however, was this statement:
“Usually seen in women aged 50-59, who have been taking the medication for 2-5 years.” Uh…okay.
My search for “Nasonex twitching” yielded similar anecdotal evidence of this side effect, including:
“Muscle twitching is found among people who take Nasonex, especially for people who are female, 60+ old, have been taking the drug for 1 – 6 months…”
What? People, I’m 37. And let me remind you that I used ONE SQUIRT of that shit. One squirt, one time. I mean, really? What the actual fuck? I haven’t been taking it for a month, let alone 2-5 years. In fact, it had only been 2 hours. But my body, in its infinite, distorted wisdom, said “Ooh, 2 whole hours?! Break out the fucked up side effects – 2 hours is just too long to be on that drug!”
Suddenly I’m remembering AGAIN why I still have so many samples from the doctor’s office, and another reason why I always put off appointments: because I can’t tolerate the bullshit drugs they always want me to try. So, I guess it’s possible my face/eye/tooth/jaw pain is from allergies, but I can’t tolerate the medication long enough to test this theory.
I swear, the level of insanity involved in the aftermath of floxing is staggering, even to an old-timer like me. (By old-timer, I’m referring to my veteran floxie status of 6.5 years.) You’d think I’d be used to this sort of thing by now, but I’m fucking not. THIS SHIT IS RIDICULOUS.
Oh, and for the record, I have no idea if the Nasonex even helped. The pain and discomfort in my face lessened after a while, but it seems to do that randomly when I don’t take anything for it. So who the fuck knows?
I’m just going to end this post here. I have other ailments that have evaded diagnosis, but I’ll save elaboration for another time. Here’s a little teaser, though: be on the lookout for a post entitled “Misadventures with my Ass”, or some such thing. That’s sure to be a fun one. (BTW, get your heads out of the gutter – I’m referring to medical issues only!) I’ve got to gather the courage to talk about my ass woes publicly, though. It might take a while. Or, it might not happen at all. We shall see. Hopefully none of my ailments will eventually result in someone saying “Oops, we thought you had allergies or minor digestive issues, but it’s actually stage IV cancer. Sorry!” Because that would totally suck.
And I’m not making light of cancer in the least, BTW. It’s actually been a fear of mine for quite some time, to receive one of the worst diagnoses possible after years of medical mysteries. So, that probably means it will happen someday.
Until then…stay tuned for more misadventures with ailments and modern medicine! Good times! Gooooood times.
Pingback: Life Can Go Fuck Itself | Dystopian Flower Garden
Hey! I just wanted to tell you, MASSES of your symptoms match(ed) mine! The sinus-eye-ear-face pain. I get it, totally. And yes I too by conv med docs was looked at like I was loco, but no longer….. I have to let you know what worked for me. If it works for you, I am more than happy to share this. I went to a cranial sacral specialist…. It is trigerminal neuralgia (a nerve that runs along the side of your face and spreads out under your eye along gums and jaw). AND, after about 3 months of therapy mine symptoms are mostly gone. Also, my eyes gums ears etc, itchy dry burning. I used saline spray for nose, saline drops for eyes, and started an oral care probiotic along w regular stomach probiotics and enzymes. These issues too are now resolved. My not a doctor opinion is, Floxing wiped your system. I hope this info helps, it’s a start….p.s if you can ever get 23andme done, look at the genes that deal w yor systems GI and Liver…. big hugs from a fellow cipro survivor.
Hurley, thank you so much for this information! I will definitely look into your suggestions & really appreciate you taking the time to share. Since writing this post, I actually had some type of dental device (forgot the name) made to assess whether some of my pain is related to my teeth being misaligned. Pain seems better, but the jury is still out on whether that is the sole cause. I have heard of trigeminal neuralgia & will keep that in mind as a possible cause. Also, craniosacral therapy – I’ve wanted to try it, and your post gives me more of an excuse! (If I have the funds, of course.) 23 and me is on my list, too. 🙂 Once again, thank you so much for sharing. Hugs to you, too!
When you get your 23andme data back…….go to FB page MTHFR Support. I am part of the group with Sterling et all. All of us do consults, but we also post TONS on healing info. Sounds like you might have TMJ too, but the craniel therapy and probiotics etc really DO help on the path to healing. 🙂 Glad I gave you some useful suggestions.
LikeLiked by 1 person